It's been almost 24 hours since our last post because of a few issues. Last night we were told that Courtney might be moved to Braintree Rehab Hospital (BRH) that night. That sent us scrambling to pack up her room. We later found out that she would not be moved until Monday.
Since then we've spent time gathering things that Courtney will need from home and elsewhere to make her comfortable at rehab.
Also Courtney has been busy moving from bed to chair and back again. She developed a rash overnight that seemed to be a reaction from some plastic. She has a latex allergy and also gets 'tape' rashes from the surgical tape. Courtney has been huffing and puffing - rapid heart beat and sometimes rapid respiratory rate for the past 20 hours.
It's not alarming just something that has to be watched and managed.
In the meantime we washed her hair today and everyone is freaking out because I cut off the deadends off her hair. I'm certain I was careful and cut straight but not everyone is convinced. Fortunately it will all grow back before Courtney realizes what I've done!
We bought aviator sunglasses and a hat for Courtney to wear on her ambulance ride from RIH to BRH as well as on future field trips (which we are so looking forward to).
Everyone here agrees that Courtney is ready for the work of rehab and we are ready to get started. As scary as it is for Courtney to be leaving the loving caregivers here we hope and pray that she will be as well cared for and as much loved as she has been here on the TICU.
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1 comment:
Wonderful News!!
Will Courtney be able to have visitors up in Braintree? Do you not want visitors right away? What can we do to help you all settle in up there? I do not know if we will be able to get up to RIH tomorrow to wish you all the best of luck. We will be thinking of you and would love to come and visit in Braintree if that is ok. Love you all -God speed
The Murphys - Frank, Tanya, Joey, Sarah, and Hannah
P.S. We have the Baby's First Christmas ornament that Courtney made for Sarah seven years ago right in the middle of our tree - we can't wait to have that wonderful, always smiling, always happy, beautiful girl back with us.
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